Well 2016 is over and I’d be lying if I said 2016 was a good year. For me it has probably been one of the worst years that I can remember. Yes of course there were postive moments but overall this year has been too difficult and depressing.
2016 saw me gain two new conditions to add to my already massive list! I have developed Addison’s Disease as well as chronic complex migraines. Addison’s was particularly worrying due to the crisis’s they can cause. It also meant I now need steroids everyday which has caused me to balloon in weight. As usual I’ve needed lots of hospital treatments and admissions. I had my port fitted for easier and more effective access for IV meds and blood tests because all my veins are now damaged and unuseable. This has been the first full year with my feeding tube. I’m learning to live with it but sometimes its really hard to manage both physically and mentally. I’ve needed quite a few tube changes this year which leaves me in pain for a few days after. Sadly my life in 2016 consisted of being at home(normally in bed) or at hospital for either an appointment or emergency treatment. I have become so isolated living in my world of hospital and home. Ive found it so difficult to cope whilst I watch people who use to be close to me drift away. I cant tell you how upsetting it is to see everyone living their lives, moving on, going to uni and being independent. I feel like I’m stuck frozen as the world carries on around me. I’ve spent most of the year trying to seek help for my mental health issues. Its taken me a whole year of waiting to finally get an appointment to someone who may help me. You see being chronically ill is difficult, tiring and draining. I am no longer confident in my own body. After nearly a year on various steroids I have put on a lot of weight quickly which means I am covered in very dark deep stretch marks. Chronic illness has robbed me of my self esteem. On a postive note (Finally!) I have been supported all the way by Matt my wonderful boyfriend and my small group of friends that I’ve met online. Although its been difficult, frustrating and at times upsetting but these guys have stood by me through everything. Matt has made sure I know his love for me is unconditional and he has tried so hard to make me see that I still look lovely. Well then we are now in 2017 and I’m not going to be starting with all that new year, new me crap. This year I have some simple ideas to making this year a bit better:
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About MeI'm Kate. A chronically Ill person just trying to live life the best I can. Please join me on my journey! Don't be afraid to ask me things :) Archives
May 2017
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