Hello to anyone out there who is still checking up to see if I'm alive. For the past month or two I've been in hospital battling sepsis. This year I've only had about 3-4 weeks at home scattered over the months. I have now been home 1-2 weeks and I'm settling back into "normal" life.
So much has changed this year and for anybody that doesn't know I am now on Total Parenteral Nutrition [TPN]. This means all my feed and some medications have to go straight into my veins. After my long stay in hospital at the beginning of the year a rather violent tube change sent my gut into intestinal failure. I have now been fully trained to set up my own feeds which means I'm no longer dependant on nurses. But sadly TPN has left me open to risks such as sepsis and of course this meant I had to have it. One PICC line and my port were the sources of my sepsis. The first source of sepsis was my PICC line so when it was removed and replaced everyone thought the sepsis was gone. Sadly the port sepsis was left unnoticed, I was discharged and after 3 days without antibiotics the sepsis came back twice as bad. The second bout of sepsis was more aggressive. I was trying to ignore my symptoms as the first lot of sepsis was scary and I was left feeling very unsafe and unstable. Anyway I was in the cinema when the symptoms got too much, by the time I reached hospital my temperature was 40c and my heart rate was 160-180bpm. The intensive care doctor had to come and assess me, luckily I avoided it...just. I have been left with post traumatic stress after this hospital stay. Im now very cautious of my lines and prefer my mum to set up my feed as I'm scared I'll do something wrong and get sepsis again. Even the thought of sepsis makes me want to cry. I'm also getting very anxious of the thought of another hospital stay as I don't think I could bare to be away from home again. Ive been home a week and a half now and I'm starting to do things like go into town but the littlest amount of exercise wipes me out. I'm left feeling upset, angry, powerless and defeated. But most of all I feel like a useless burden.
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About MeI'm Kate. A chronically Ill person just trying to live life the best I can. Please join me on my journey! Don't be afraid to ask me things :) Archives
May 2017
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