See another long pause in blog posts…. What can I say, life got in the way of living. I am sat writing this post on my way to yet another hospital appointment. It passes the time and keeps me busy I guess.
Chronic Illness is many different things to different people. To my doctors and consultants it is a set of long term symptoms and conditions which need managing. To my pharmacist it is a good source of income and a large prescription every month. To my GP it is the weekly catch up and the chasing of test results. To people who dont know me its nothing, in their eyes I am normal. But to my family chronic illness is so much more than a set of symptoms. Chronic illness is sitting by my bedside during yet another hospital admission. Its holding my hand and turning my head when a nurse tries and fails to take blood. Its seeing your teenage daughter unable to do things that other teenagers can do. Its the worrying and monitoring on Friday night when my chest begins to deteriorate yet again. Its listening to a doctor giving your daughter yet another diagnosis and smiling bravely. To my family chronic illness is just day to day life. Simple. To my boyfriend chronic illness is frustrating. It’s coming to sit with me in hospital when I’m admitted again. Its seeing your girlfriend in bed all day with no energy. Chronic illness is boring and stops us having fun. It’s that heartbroken feeling you get when you worry about my future. But chronic illness is also unconditional love. Its supporting me through my darkest days. Its laughing and sharing dark humour about my conditions. Its him pushing me to do the most I can even when I feel shit. Cause chronic illness to my boyfriend is me. To me though chronic illness is difficult. It is frustrating and depressing. Its waking up and not wanting to leave my bed as I feel like I havent really slept for 10 hours. Its constant hospital appointments and admissions. Its going to hospital so many times you consider the staff to be a second family. Its giving up when you feel you cant go on with such a shitty existence when you are having a bad week. It’s disapointment when I don’t progress as quickly as my friends. Its compromising, so many compromises. But its also appreciating each and every day I get. It’s finding amazing friends on online support groups. Its carrying on despite all the set backs. It is my chronically fabulous life. You see chronic illness isnt a set of symptoms is a completly different lifestyle.
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About MeI'm Kate. A chronically Ill person just trying to live life the best I can. Please join me on my journey! Don't be afraid to ask me things :) Archives
May 2017
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